Comments on: FDA Warning On Byetta – Is It Safe? http://www.battlediabetes.com/fda-warning-byetta/ Helping Diabetics with Support and Information on Diabetes Mon, 19 Jul 2010 17:13:54 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Nancy Lake http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5224 Nancy Lake Fri, 25 Jun 2010 05:20:43 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5224 I have been taking Byetta now for almost 7 months. I had heard that it is not good to take it. I have been reading your commits. I have been having about back pain. I had an operation on my back, but have been having more pain than I use to since I have been on Byetta. Also my legs hurt. Why in the world would a Dr. put you this medication if it so bad? I am very upset about this. I have been taking Byetta now for almost 7 months. I had heard that it is not good to take it. I have been reading your commits. I have been having about back pain. I had an operation on my back, but have been having more pain than I use to since I have been on Byetta. Also my legs hurt. Why in the world would a Dr. put you this medication if it so bad? I am very upset about this.

]]> By: Sandy J http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5204 Sandy J Sun, 30 May 2010 03:35:14 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5204 I took Byetta for 4 years. Did not know about the throid tumors that it causes. I had 2 removed with one full side of my throid and half of the other side, Wish I known, I was just diagnoised with pancreatic cancer in March. Was lucky enough to be one of the 25% that can have a wiffle surgery. Am now taking chemo and pray to God that it helps with any stray cells. Then they can only promise you 2 years min. My encroknoligest had me call lilly and get registereed with them. Oh by the way lilly also makes the checo drug. Watch for the warning signs. tHESE WATRNING PLi hOW JMANY jDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDD I took Byetta for 4 years. Did not know about the throid tumors
that it causes. I had 2 removed with one full side of my throid and half of the other side, Wish I known, I was just diagnoised
with pancreatic cancer in March. Was lucky enough to be one of the 25% that can have a wiffle surgery. Am now taking chemo and pray to God that it helps with any stray cells. Then they can only promise you 2 years min. My encroknoligest had me call lilly
and get registereed with them. Oh by the way lilly also makes the checo drug. Watch for the warning signs. tHESE WATRNING PLi hOW JMANY jDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDDD

]]> By: George Evans http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5192 George Evans Sat, 15 May 2010 07:02:11 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5192 My answer to the question of why I don't want to be on Insulin is quite simply one of I hate needles and I hate injecting myself. I am tired of all the black and blue marks on my body from the needles. One reason that I get the black and blue marks easily is that I have a low platelet count due to residuals of an illess that I had 33 years ago. I have no objection with taking oral medications. Another thing is that I am fighting other diseases, which are considered to be possibly life threatening. I have to live with the fact that I have non-viral hepatitis and in the future I will also have to be on the Liver Transplant list. Needless to say I have to be checked twice a year for possible liver cancer. Also there is a pacemaker that was implanted in me 5 years ago. What I have mentioned above is but the"tip of the iceberg" of what is wrong with me. As one specialist that I see basically told me, just when I thought that I knew about everything that is wrong with you another problem arises. My answer to the question of why I don’t want to be on Insulin is quite simply one of I hate needles and I hate injecting myself.
I am tired of all the black and blue marks on my body from the needles. One reason that I get the black and blue marks easily is that I have a low platelet count due to residuals of an illess that I had 33 years ago.
I have no objection with taking oral medications.
Another thing is that I am fighting other diseases, which are considered to be possibly life threatening.
I have to live with the fact that I have non-viral hepatitis and in the future I will also have to be on the Liver Transplant list.
Needless to say I have to be checked twice a year for possible liver cancer.
Also there is a pacemaker that was implanted in me 5 years ago.
What I have mentioned above is but the”tip of the iceberg” of what is wrong with me.
As one specialist that I see basically told me, just when I thought that I knew about everything that is wrong with you another problem arises.

]]> By: George Evans http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5191 George Evans Sat, 15 May 2010 06:39:21 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5191 The medication that I discovered is counter active to Byetta is the medication Reglan. I take Reglan for a disease called Gastro-paresis. From the research that I have done, I discovered that Byetta slows ones digestive system making you feel full on a longer basis. The medication Reglan is used to speed up ones' digestive system. In my case the two medications are counter productive. My Endocrinologist had a list off all medications that I take but he never even thought to look for any problems. It was my wanting to come off of Byetta that led to my research and the discovery of the fact that these two medications are counter productive to each other. When I pointed this out to the Endocrinologist, he told me he hadn't thought about it but that I should come off of Byetta. Needless to say, my Primary Care Physician was not to happy about this as she was the one who insisted that I be placed on Byetta. The medication that I discovered is counter active to Byetta is the medication Reglan.
I take Reglan for a disease called Gastro-paresis.
From the research that I have done, I discovered that Byetta slows ones digestive system making you feel full on a longer basis.
The medication Reglan is used to speed up ones’ digestive system.
In my case the two medications are counter productive.
My Endocrinologist had a list off all medications that I take but he never even thought to look for any problems.
It was my wanting to come off of Byetta that led to my research and the discovery of the fact that these two medications are counter productive to each other.
When I pointed this out to the Endocrinologist, he told me he hadn’t thought about it but that I should come off of Byetta.
Needless to say, my Primary Care Physician was not to happy about this as she was the one who insisted that I be placed on Byetta.

]]> By: Sharon Conaway http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5190 Sharon Conaway Fri, 14 May 2010 20:46:09 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5190 GEORGE EVANS: I would ask the same question as Aimee @Homespun Threads, and would ask the same question as Karen Talbert about precisely what medications don't do well with Byetta. I take a lot medications for different conditions. For the diabetes, I'm currently on Janumet, a combination of Januvia and Metformin. I posted on this blog a couple of years ago when I started taking Byetta and lost a lot of weight. However, the drug eventually lost its kick/wore off/didn't work anymore and I stopped taking it. The weight came back on, naturally. There is not yet any magic bullet. I was considering going back on Byetta again to lose the weight again. I suffered no ill effects while on Byetta except for the first two months of getting used to it. Once that was passed, it was great for me until it stopped working even at a higher dose. Yes, I know all about the pancreatitis and pancreatic cancer associated with Byetta. Am wondering if it's worth trying again even though I know the effects won't last. George? Anyone? Thanks, Matt K, for the tip about fish oil. Those pills sure do stink (I bought a bottle the other day.) but you say it really works. Do you take it? My Type 2 diabetes is not a bad case and has never been out of control. My A1C's are usually between 5.9 and 6.5 depending on my weight. I was diagnosed with it back in 1992 and see an endocrinologist for it. GEORGE EVANS: I would ask the same question as Aimee @Homespun Threads, and would ask the same question as Karen Talbert about precisely what medications don’t do well with Byetta. I take a lot medications for different conditions. For the diabetes, I’m currently on Janumet, a combination of Januvia and Metformin. I posted on this blog a couple of years ago when I started taking Byetta and lost a lot of weight. However, the drug eventually lost its kick/wore off/didn’t work anymore and I stopped taking it. The weight came back on, naturally. There is not yet any magic bullet. I was considering going back on Byetta again to lose the weight again. I suffered no ill effects while on Byetta except for the first two months of getting used to it. Once that was passed, it was great for me until it stopped working even at a higher dose. Yes, I know all about the pancreatitis and pancreatic cancer associated with Byetta. Am wondering if it’s worth trying again even though I know the effects won’t last. George? Anyone?

Thanks, Matt K, for the tip about fish oil. Those pills sure do stink (I bought a bottle the other day.) but you say it really works. Do you take it?

My Type 2 diabetes is not a bad case and has never been out of control. My A1C’s are usually between 5.9 and 6.5 depending on my weight. I was diagnosed with it back in 1992 and see an endocrinologist for it.

]]> By: Karen Talbert http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5189 Karen Talbert Fri, 14 May 2010 18:21:55 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5189 George, what medication is counter active to the Byetta? Would be nice for us to know if we are on that medication and considering Byetta. Thanks George, what medication is counter active to the Byetta? Would be nice for us to know if we are on that medication and considering Byetta.
Thanks

]]> By: Aimee @ HomeSpun-Threads http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5177 Aimee @ HomeSpun-Threads Fri, 23 Apr 2010 14:04:29 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5177 @George Evans, why in the world would you be fighting insulin??? If you aren't going to control your diabetes, don't complain about the fact that you are killing yourself. @George Evans, why in the world would you be fighting insulin??? If you aren’t going to control your diabetes, don’t complain about the fact that you are killing yourself.

]]> By: Matt K http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5165 Matt K Sun, 28 Mar 2010 17:43:59 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5165 Fish Oil helps prevent/cure inflammation anywhere in the body. Fish Oil helps prevent/cure inflammation anywhere in the body.

]]> By: George Evans http://www.battlediabetes.com/fda-warning-byetta/comment-page-3/#comment-5159 George Evans Wed, 17 Mar 2010 18:10:46 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5159 I posted a reply about Byetta on this site about 2 years ago. My PCP insisted, nor really insisted, my PCP told me that I had no choice in this matter. I was informed then that my only choices were Byetta or Insulin due to various medical conditions that I have. I finally got my PCP to send me to an Endoncrinologist in hopes that he would take me off of Byetta. He refused to take me off of this awful medication. It took time and research on my behalf that allowed me to force his hand and get taken off of Byetta. I discovered that one other of the medications that I am taking is counter active to Byetta. This other medication that I am taking speeds up the digestive system and Byetta slows down the digestive system, it is like the two medications are fighting each other. I presented my findings to the Endo and he finally relented and took me off of Byetta. When I went back to my PCP, she was very upset that I had been taken off of Byetta. I told her that there was no way that I was going to take Byetta period and that other medication was more important for me to take. Now a year or so later, I have had an additional diagnosis of CKD stage III (Chronic Kidney Disease). I have been told that the reason I have CKD is that my Type II has been out of control for many years, I don't deny that at all. I was also on Glyburide/Metformin and now I have been taken off of Metformin as I have been told that since I have CKD I can't metformin. I have been placed on Novolog(Insulin) and I am fighting having to be on any form of insulin. To add insult to injury, so to speak, yesterday the Endo tried putting me back on Byetta. The Endo lost that fight and I reminded him of the drug interaction involving the one of the other medications that I take. Besides the diabetes that I have had for some 16 or so years I am also fighting the recently diagnosed Kidney Disease and Liver Disease, I have non-alcoholic cirrossis of the liver. I am also fighting the possiblity that I am pre cancerous for liver cancer. George Evans I posted a reply about Byetta on this site about 2 years ago.
My PCP insisted, nor really insisted, my PCP told me that I had no choice in this matter.
I was informed then that my only choices were Byetta or Insulin due to various medical conditions that I have.
I finally got my PCP to send me to an Endoncrinologist in hopes that he would take me off of Byetta.
He refused to take me off of this awful medication.
It took time and research on my behalf that allowed me to force his hand and get taken off of Byetta.
I discovered that one other of the medications that I am taking is counter active to Byetta. This other medication that I am taking speeds up the digestive system and Byetta slows down the digestive system, it is like the two medications are fighting each other.
I presented my findings to the Endo and he finally relented and took me off of Byetta.
When I went back to my PCP, she was very upset that I had been taken off of Byetta. I told her that there was no way that I was going to take Byetta period and that other medication was more important for me to take.

Now a year or so later, I have had an additional diagnosis of CKD stage III (Chronic Kidney Disease).
I have been told that the reason I have CKD is that my Type II has been out of control for many years, I don’t deny that at all.
I was also on Glyburide/Metformin and now I have been taken off of Metformin as I have been told that since I have CKD I can’t metformin.
I have been placed on Novolog(Insulin) and I am fighting having to be on any form of insulin.
To add insult to injury, so to speak, yesterday the Endo tried putting me back on Byetta. The Endo lost that fight and I reminded him of the drug interaction involving the one of the other medications that I take.
Besides the diabetes that I have had for some 16 or so years I am also fighting the recently diagnosed Kidney Disease and Liver Disease, I have non-alcoholic cirrossis of the liver. I am also fighting the possiblity that I am pre cancerous for liver cancer.

George Evans

]]> By: Michael http://www.battlediabetes.com/fda-warning-byetta/comment-page-2/#comment-5141 Michael Sat, 13 Mar 2010 18:33:14 +0000 http://www.battlediabetes.com/fda-warning-byetta/#comment-5141 My doctor prescribed Byetta for me promoting it as this great drug. The first side affect I noticed was the way it slowed down my entire digestive system which did help with weight loss but I could also go 3 days without a bowel movement. The doctors answer just take daily fiber therapy. Then I started seeing all these warning against this wonder drug and asked my doctor if I should continue taking it. I was told those were isolated cases where the people who had these problems has serious underlying conditions that caused their Pancreatitis. Against my better judgement I stayed with my doctors suggestions to keep taking this death medicine. September 2009 I start having serious abdominal pain anytime I eat. For 2 weeks they run me through a battery of tests and exams all along saying it's gotta be your gallbladder. October 16,2009 the pain got so bad I could not get off the floor. The worst pain I have ever felt in my life I thought I was dying. They rush me to the emergency room it takes the ER doctor 15 minutes to do what my doctor couldn't do in 2 weeks....full blown pancreatitis. After X-rays, ultrasound, two CT's and hyda-scans he looks at my medications draws blood for some labs and figures it out. Spent a few days in the hospital getting my levels back to normal and I am off the Byetta now but still having problems I directly blame on this horrible horrible drug. If your doctor wants to start you on this medication DO NOT TAKE IT. My doctor prescribed Byetta for me promoting it as this great drug. The first side affect I noticed was the way it slowed down my entire digestive system which did help with weight loss but I could also go 3 days without a bowel movement. The doctors answer just take daily fiber therapy. Then I started seeing all these warning against this wonder drug and asked my doctor if I should continue taking it. I was told those were isolated cases where the people who had these problems has serious underlying conditions that caused their Pancreatitis. Against my better judgement I stayed with my doctors suggestions to keep taking this death medicine. September 2009 I start having serious abdominal pain anytime I eat. For 2 weeks they run me through a battery of tests and exams all along saying it’s gotta be your gallbladder. October 16,2009 the pain got so bad I could not get off the floor. The worst pain I have ever felt in my life I thought I was dying. They rush me to the emergency room it takes the ER doctor 15 minutes to do what my doctor couldn’t do in 2 weeks….full blown pancreatitis. After X-rays, ultrasound, two CT’s and hyda-scans he looks at my medications draws blood for some labs and figures it out. Spent a few days in the hospital getting my levels back to normal and I am off the Byetta now but still having problems I directly blame on this horrible horrible drug. If your doctor wants to start you on this medication DO NOT TAKE IT.

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